The time has come to make a video diary.

I read an article some months ago about parents with terminal illnesses are advised to video themselves answering typical life questions that their kids might have growing up. Research has shown that kids really value seeing their parent's facial expressions, hearing their voices, hopefully getting across some of their personality. My diagnosis means my life … Continue reading The time has come to make a video diary.

It’s 4am. It’s dark, quiet and I’m consuming biscuits at an undignified pace.

It's fairly standard procedure after a biopsy to control the swelling in your brain with steroids. In my case I was sent home with a truckload of dexamethasone and a blue medical card to carry with me at all times. The level of concern from the medical teams at discharge is carefully metered out in … Continue reading It’s 4am. It’s dark, quiet and I’m consuming biscuits at an undignified pace.